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 Pain for a year

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dantheman



Posts : 130
Join date : 2016-04-04
Location : Adelaide

PostSubject: Re: Pain for a year   Sat Apr 30, 2016 12:11 pm

What is Lauracidin and where do you get it from.
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Sat Apr 30, 2016 12:13 pm

You can order online... google it. Lauracidin is purest form of monolaurin
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Sat Apr 30, 2016 12:20 pm

The reason i take is that it successfully works on bacteria and viruses accept a few... thought it would help towards majority of theories there for worth a shot. Tbh i felt better on it and progressively getting better until i get a episode and it makes me feel like going back to square one, at these times i have to remember im not, the episodes are no where near what they were at the begining of all this. Im going on the raw juice diet now too... keeping up with all supplements but yeah going all out on my system now. The only ones who have got well did it through diet so thats why im doing it. Giving up alot for a while until such time i can start treating myself.
Hard work but hopefully reap the rewards
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Tina2



Posts : 149
Join date : 2016-02-15
Location : Queensland Australia

PostSubject: Re: Pain for a year   Sat Apr 30, 2016 3:09 pm

Thanks Strandsidemol appreciate all your help
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Sat Apr 30, 2016 7:23 pm

No worries at all... can only give you info i found or has helped me.
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Tina2



Posts : 149
Join date : 2016-02-15
Location : Queensland Australia

PostSubject: Re: Pain for a year   Tue May 03, 2016 1:58 pm

Thought I would give you all an up date on lauracidin http://biomedcafe.com.au/product/163/Lauric-acid-antimicrobial-(Lauricidin)-227g#.Vyg8D4RcSko
Been on it for 6 days now and no negative side effect which is amazing for me. I "think" it is helping, there have been definate changes around the vulva, no longer dry or raw though still inflammed but even that is less today. It seems expencive but when you look at the amount of these tiny beads and find you only need to take a small amount every day it is not at all expencive.

Combined with the Oxybutinin, I am getting noticable improvement, though I admit the Oxy is making me quite sleepy, but then I am also taking zertec ever night ( it helps with mass cells in the bladder and helps calm bladder nerves)

The thing I am finding really interesting is that since killing off the Candida, medications I have tried in the past and didnt work, now seem to be slowly having at least some effect. I am starting to wonder if the Candida was so bad it was stopping other things working. When I got the tests back from the US it did say it found NO Candida and I know I had a very bad infection 18 months ago before starting on intence long term Fluconazol.

Hope everyone is having a better day today.
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Thu May 05, 2016 1:34 pm

Glad the lauracidin helping, i like it. Still going raw juice diet at minute but its getting harder for sure. I can start introducing foods from tomorrow and think im now going to try and keep to an anti candida diet, no evidence to suggest but working on that theory. Ill have no foods left to try at this rate. Lol
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Thu May 05, 2016 1:43 pm

Update for professor - i went to see a specialist biofilm dr a while back and have basically been told i am a confusing case.

"As discussed staph eli can cause some symptoms but it certainly is not as pathogenic as uropathogens such as staph aureus or coliforms, e coli etc

In addition biofilm organisms usually demonstrate increased antimicrobial resistance patterns, where as your antibiogram demonstrates no antibiotic resistance. As this is an emerging science/ clinical area its not black and white, symptoms, history, results together with experience in interpretation have to be employed"

I have written an email back this was couple months ago now and have had no answer back at all. I gave my hard earnt money, she took my research off me and then told me i was confusing and never got back to me.

I cannot afford any more ifs, hopes and maybe's im at my wits end.
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Tina2



Posts : 149
Join date : 2016-02-15
Location : Queensland Australia

PostSubject: Re: Pain for a year   Thu May 05, 2016 2:56 pm

Hi Strandsidemol

Great you are passing on info for the Prof. That is awful the doc took your info and has not got back to you. I just dont get it, surely they should be grabbing ideas and info and at least looking at what else is out there that might help.
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Tina2



Posts : 149
Join date : 2016-02-15
Location : Queensland Australia

PostSubject: Re: Pain for a year   Thu May 05, 2016 2:56 pm

Hi Strandsidemol

Great you are passing on info for the Prof. That is awful the doc took your info and has not got back to you. I just dont get it, surely they should be grabbing ideas and info and at least looking at what else is out there that might help.
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dantheman



Posts : 130
Join date : 2016-04-04
Location : Adelaide

PostSubject: Re: Pain for a year   Fri May 06, 2016 11:38 am

I notice there is a lot of desperation in every ones voices. STAY CALM as Bladder pain feeds on anxiety and vice versa. We are all desperate for effective treatments, i can hear it.
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Tina2



Posts : 149
Join date : 2016-02-15
Location : Queensland Australia

PostSubject: Re: Pain for a year   Fri May 06, 2016 2:55 pm

Hi Dan

i think it is just that it is so frustrating. 1 step forward and 2 steps back. You just feel you are starting to get somewhere and bang it starts again. Have felt so much better for the last couple of days but today I feel like Cr--p. Yep trying to keep calm but not easy somedays.

Hope everyone is having a better day today
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Thu May 19, 2016 4:32 am

So after feeling better than i have in ages after completing a raw juice diet to mainly eating raw, taking lauricidin, serrapeptase, vit d3, coconut oil, probiotics, tonight i have noticed that foul smell in urine, only way to describe it is chemical pungent smell. I dont have any pain as such but full bladder feeling still present. Im now worried that the pain and all other symptoms are going to come back. I switch my opinions so frequently as to what could be causing my bladder issues hence why i been trying to address many natural supplements. I so hope i get an answer to what is causing this soon so i can get my life back.
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Tina2



Posts : 149
Join date : 2016-02-15
Location : Queensland Australia

PostSubject: Re: Pain for a year   Thu May 19, 2016 6:40 am

Oh NO Stransidemol, hang in there, I have noticed a strange smell "sometimes" since starting D Mannose maybe it is just more bad stuff leaving your system.
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Strandsidemol



Posts : 64
Join date : 2016-02-15
Age : 39
Location : Leicestershire,uk

PostSubject: Re: Pain for a year   Thu May 19, 2016 2:51 pm

Yep i am doing, upped the lauricudin and taking extra coconut oil. Had a few urethral spasms this morning Sad
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