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 Why doesnt anyone know about this study

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dantheman



Posts : 130
Join date : 2016-04-04
Location : Adelaide

PostSubject: Why doesnt anyone know about this study   Tue May 31, 2016 11:42 am

I have spoken to my Pelvic Pain Physio,my pain specialist, and urologists about this study and none of them have have heard anything about it. Even my pain specialist said she has been to conferences in WA and mentioned it to other peofessors at Uni WA who were unaware of of this new research study. I would have thought that a study as important as this one would be widely embraced by all the professionals involved in bladder pain. Or in pain generally. Awareness is the first step to receiving more funding.How do we spread the word assuming that this is ok.
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njclifford



Posts : 11
Join date : 2016-07-07

PostSubject: Re: Why doesnt anyone know about this study   Fri Jul 29, 2016 8:06 am

I am the same - have been living in WA and seen 3 different urologists, had several procedures, seen pain neurosurgeons, and none have mentioned this study.

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lak78



Posts : 24
Join date : 2016-01-05
Location : Brisbane, Australia

PostSubject: Re: Why doesnt anyone know about this study   Fri Jul 29, 2016 9:36 am

I guess the research hasn't started yet so maybe that's why the urologists don't know. I make it my business to let any of my GP's or urologist know, the more people that do, the better! I also make it my business to educate my GP's about this condition and one of my doctors told me she has since had 2 other patients diagnosed with IC since she met me. I feel really proud about that because it means those 2 patients got answers about what was wrong with them a lot quicker than we probably did. Spread the word, I say Smile
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Franrose



Posts : 10
Join date : 2016-06-09

PostSubject: Re: Why doesnt anyone know about this study   Fri Jul 29, 2016 10:08 am

My uro was Not. Interested. at all.  It's almost like you are questioning their judgement by mentioning that you might be seeking information or advice elsewhere.
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lak78



Posts : 24
Join date : 2016-01-05
Location : Brisbane, Australia

PostSubject: Re: Why doesnt anyone know about this study   Fri Jul 29, 2016 10:13 am

Their lack of interest is what forces us to look elsewhere so tough!
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njclifford



Posts : 11
Join date : 2016-07-07

PostSubject: Re: Why doesnt anyone know about this study   Fri Jul 29, 2016 10:42 am

There is a urologist here in Brisbane that will not take on patients with IC as he likes to have situations he can fix...... no names though.
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